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Author
Publisher
Riverhead Books
Pub. Date
2023.
Edition
First edition.
Physical Desc
xxx, 222 pages ; 22 cm
Language
English
Description
"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors...
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